Monday, April 21, 2014
Am I the oldest person with CF?
Thank goodness there are plenty of people with Cystic Fibrosis older than me! What you do with your cystic fibrosis differs wildly. But no matter what you do the odds are generally against you. Some people have a career and family and that keeps them strong and motivated to be compliant and fight CF. I plan adventures and that motivates me to keep fit and healthy. Having a dog helps me get out thehouse hail rain or shine for a decent walk with plenty of hills each day, or even a paddle in my kayak (with dog!). My adventure planning motivates me to ride my bicycle everywhere everyday around town - even though I now use an electric bike it still makes me cough (I consider the power the equivalent to a permanent tail wind).
But just to answer he question, here is the graph for Australia in 2012. I still have room to move at 48.
I did see a graph indicating lung function decline, and that is more worrying. Hardly blowing 35% of expected is not a good place to be but I'm coping with it quite well. According to the below graph it is just about where statistics would project me at.