Wednesday, March 27, 2013

Walk the Way of CF?

We are slowly getting closer to September. We are all watching the airfares to Europe now. People's plans are shaping up, people decide they can or cannot come with me.

If you have interest in joining us hike the El Camino de Santiago de Compostella in Spain for Cystic Fibrosis act now and start planning! Even if you like to join for a week or two, go ahead and get on Facebook to join the official event:

We also need corporate sponsors for the team, sponsoring involves pledging to help pay for some accommodation or transport in Spain for the team. Sponsors will be mentioned on postcards and the web depending on level of commitment. But more then anything we need people to join us and give us press! My coughing4cf ventures have been on CNN and the Asia News Channel, and we hope to repeat that so we can spread inspiration to the world and bring people's attention to Cystic Fibrosis, Organ Donation and inspiring research such as Phage Therapies!

Let's have a show of hands and email today!

Friday, March 15, 2013

Draw CF

Cystic Fibrosis is invisible to others. We just have a nasty cough and get out of breath quickly.

To educate people we have devised a slightly unusual fundraiser; DRAW CF. I am the CF person with all the typical CF traits ranging from clubbed fingernails to barrel chest and distended belly. An art teacher explains CF to the class and teaches them to draw me.

After almost 2 years of thinking about it we conducted a test run at home and it is determined to be a feasible plan. It may sound a little sordid, but most medical things are. It was very scary to sit there in my undies being drawn, but it really is very kosher. Not scary at all! A good time was had by all and everyone was edumecated on Cystic Fibrosis.

If anyone is interested in organising one let me know and if i can't make it maybe you can find your own CF model and I can supply the sample lesson plan for you.

Go on, relax, have fun and learn about CF and learn to draw! From $15 per person including art supplies. Click here for inquiries .

The previous adventure!

Register with the Organ Donor Register

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