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Monday, December 15, 2014

Cyclists so far!

Plans are shaping up nicely!
We have the following riders:

Jo (pictured on the left below), Hash House Harrier from Devonport Hash will be coming along for the entire bicycle ride, and fellow Devonport Hasher Cindy (right) for some of the ride. Cindy has joined me on various other Cystic Fibrosis Fundraisers (Vietnam to Singapore, Paris to Istanbul, Sydney to Melbourne, Mount Kinabalu,...)


Marilyn (pictured below), Hash House Harrier from Burnie Hash was the first person to commit to the entire adventure, both ride and hike. Marilyn is hoping to bring her main-man along for some sections but has volunteered their vehicle and caravan to be our support vehicle!


Karina from Adelaide (pictured below standing next to me) is a veteran adventurer herself, having joined me on  the El Camino in Spain, and cycled with us from Vietnam to Singapore. She is not 100% committed yet, but we are all confident she will come.


If you are interested in coming along and help ride and drive with us, or interested in helping out or walking along the Bibbulmun Track in Western Australia email: info@coughing4cf.com. We plan to start the ride 8 March 2015 and arrive around Easter in Albany, WA.  The hike along the Bibbulmun Track will start after a few good rest days in Albany, and will go from mid April to early June 2015. 

www.proelectricbikes.com.au has kindly come on board again to supply us with the popular Aseako Electric Bicycles. Proelectricbikes have sponsored me in the past with Zoco Rossa Electric Bikes for the 5000km+ ride from Hanoi to Singapore in the past. We have great faith in these bicycles and hope to make the distance across the Nullarbor to spread inspiration and awareness about Cystic Fibrosis and the importance of becoming an Organ Donor.


WE ARE URGENTLY LOOKING FOR A FEATURE SPONSOR WHO WOULD LIKE TO HELP US WITH TEAM EXPENSES ALONG THE WAY!

Contact support@coughing4cf.com if you think you can help!

Saturday, October 4, 2014

Friends of the Bibbulmun Track


Excellent start to a new adventure! Ree and I became an official Bibbulmun Family!
Events are posted on Facebook, if you like to keep posted with the organisation of either the Ride or the Hike click JOIN: https://www.facebook.com/Coughing4Cf/events.

Also, negotiations with possible sponsors are taking shape for the Ride and Hike for Cystic Fibrosis. Dates and itineraries are set (in mud).

Hardest for me will be leaving Lily behind and find a place for her for a couple of months while Ree comes over to Western Australia.

Hiking the Bibbulmun

The Bibbulmun track will be the biggest challenge. I will need to carry my own supplies and somehow keep my medicine cool... Fortunately it is a beautiful hike and there may be a few people joining me here and there. Most people seem to hike from North to South, I am doing it the other way as I like to go from Devonport to Perth, and given we want the last of the summer tailwinds on the Nullarbor and avoid the heat of summer in WA.

To understand how beautiful it is have a look at these links:

Couple from PNG: http://www.mitupela.net/gnw/bibbulmun.html
Kim's Walk: http://www.kimswalk.com/events/2013-07
Yetizone Guidebook: http://www.yetizone.com/australia/Bibbulmun/Track/Bibbulmun-Track.shtml
The official page: https://www.bibbulmuntrack.org.au

Here is the proposed schedule to date, starting the walk Easter Sunday:

DATE FROM TO DIST
Saturday, 5 April 2014 Albany Hidden Valley  20 km
Sunday, 6 April 2014 Hidden Valley Cosey Corner  15 km
Monday, 7 April 2014 Cosey Corner Torbay  2 km
Tuesday, 8 April 2014 Torbay West Cape Howe  16 km
Wednesday, 9 April 2014 West Cape Howe Nulaki  17 km
Thursday, 10 April 2014 Nulaki Denmark 14 km
Friday, 11 April 2014 REST REST
Saturday, 12 April 2014 Denmark William Bay  21 km
Sunday, 13 April 2014 William Bay Boat Harbour  20 km
Monday, 14 April 2014 REST REST
Tuesday, 15 April 2014 Boat Harbour Peaceful Bay  23 km
Wednesday, 16 April 2014 Peaceful Bay Rame Head  11 km
Thursday, 17 April 2014 Rame Head Giants 16 km
Friday, 18 April 2014 Giants Franklin River  14 km
Saturday, 19 April 2014 Franklin River Walpole  18 km
Sunday, 20 April 2014 REST REST
Monday, 21 April 2014 Walpole Mount Clare 10 km
Tuesday, 22 April 2014 Mount Clare Long Point 12 km
Wednesday, 23 April 2014 Long Point Woolbales 17 km
Thursday, 24 April 2014 Woolbales Mount Chance 20 km
Friday, 25 April 2014 Mount Chance Dog Pool  19 km
Saturday, 26 April 2014 REST REST
Sunday, 27 April 2014 Dog Pool Lake Maringup  25 km
Monday, 28 April 2014 Lake Maringup Gardner  16 km
Tuesday, 29 April 2014 Gardner Northcliffe  15 km
Wednesday, 30 April 2014 Northcliffe Schaffer  14 km
Thursday, 1 May 2014 Schaffer Warren  21 km
Friday, 2 May 2014 Warren Pemberton  21 km
Saturday, 3 May 2014 REST REST
Sunday, 4 May 2014 Pemberton Beedelup  24 km
Monday, 5 May 2014 Beedelup Beavis  19 km
Tuesday, 6 May 2014 Beavis Campsite Boardinghouse  19 km
Wednesday, 7 May 2014 REST REST
Thursday, 8 May 2014 Boardinghouse Tom Road  23 km
Friday, 9 May 2014 Tom Road Donnelly River  16 km
Saturday, 10 May 2014 REST REST
Sunday, 11 May 2014 Donnelly River Gregory Brook  21 km
Monday, 12 May 2014 Gregory Brook Blackwood  18 km
Tuesday, 13 May 2014 Blackwood Balingup  17 km
Wednesday, 14 May 2014 REST REST
Thursday, 15 May 2014 Balingup Grimwade  23 km
Friday, 16 May 2014 Grimwade Noggerup  22 km
Saturday, 17 May 2014 Noggerup Yabberup  18 km
Sunday, 18 May 2014 Yabberup Collie  20 km
Monday, 19 May 2014 REST REST
Tuesday, 20 May 2014 REST REST
Wednesday, 21 May 2014 Harris Dam Yourdamung 15 km
Thursday, 22 May 2014 Yourdamung Possum Springs 20 km
Friday, 23 May 2014 Possum Springs Dookanelly  20 km
Saturday, 24 May 2014 Dookanelly Murray  18 km
Sunday, 25 May 2014 Murray Swamp Oak  19 km
Monday, 26 May 2014 Swamp Oak Dwellingup  13 km
Tuesday, 27 May 2014 REST REST
Wednesday, 28 May 2014 Dwellingup Chadoora  20 km
Thursday, 29 May 2014 Chadoora Mount Wells  15 km
Friday, 30 May 2014 Mount Wells White Horse Hill  15 km
Saturday, 31 May 2014 White Horse Hills Gringer Creek  18 km
Sunday, 1 June 2014 Gringer Creek Bushstop  22 km
Monday, 2 June 2014 Bush Stop Monadnocks  20 km
Tuesday, 3 June 2014 REST REST
Wednesday, 4 June 2014 Monadnocks Canning  16 km
Thursday, 5 June 2014 Canning Mount Dale  20 km
Friday, 6 June 2014 Mount Dale Waalegh  20 km
Saturday, 7 June 2014 Waalegh Ball Creek  18 km
Sunday, 8 June 2014 Ball Creek Kalamunda  21 km

Ride across the Nullarbor

Riding from Devonport to Albany...  Just a start...

DATE TOWN KMS

Melbourne 0
Saturday, 1 March 2014 Geelong 80
Sunday, 2 March 2014 Camperdown 119
Monday, 3 March 2014 Warrnambool 68
Tuesday, 4 March 2014 Heywood 93
Wednesday, 5 March 2014 Mount Gambier 90
Thursday, 6 March 2014 Naracoorte 104
Friday, 7 March 2014 Coorong 168
Saturday, 8 March 2014 Victor Harbour 18
Sunday, 9 March 2014 Adelaide 90
Monday, 10 March 2014 Kadina 150
Tuesday, 11 March 2014 Lock 201 ferry 50km!
Wednesday, 12 March 2014 Elliston  92
Thursday, 13 March 2014 Port Kenny 70
Friday, 14 March 2014 Streaky Bay 62
Saturday, 15 March 2014 Ceduna 110
Sunday, 16 March 2014 Penong 73
Monday, 17 March 2014 Nundroo 79
Tuesday, 18 March 2014 Yalata 52
Wednesday, 19 March 2014 Nullarbor 93
Thursday, 20 March 2014 Border Village 186
Friday, 21 March 2014 Eucla  13
Saturday, 22 March 2014 Mundrabilla  66
Sunday, 23 March 2014 Madura 116
Monday, 24 March 2014 Cocklebiddy  91
Tuesday, 25 March 2014 Caiguna  65
Wednesday, 26 March 2014 Balladonia  154 all straight!
Thursday, 27 March 2014 Fraser Range 117
Friday, 28 March 2014 Norseman 105
Saturday, 29 March 2014 Salmon Gums 97
Sunday, 30 March 2014 Esperance 104
Monday, 31 March 2014 Munglinup 106
Tuesday, 1 April 2014 Ravensthorpe 81
Wednesday, 2 April 2014 Jerramungup 116
Thursday, 3 April 2014 Manypeaks 139
Friday, 4 April 2014 Albany 40

Monday, April 21, 2014

Am I the oldest person with CF?


Thank goodness there are plenty of people with Cystic Fibrosis older than me! What you do with your cystic fibrosis differs wildly. But no matter what you do the odds are generally against you. Some people have a career and family and that keeps them strong and motivated to be compliant and fight CF. I plan adventures and that motivates me to keep fit and healthy. Having a dog helps me get out thehouse  hail rain or shine for a decent walk with plenty of hills each day, or even a paddle in my kayak (with dog!). My adventure planning motivates me to ride my bicycle everywhere everyday around town - even though I now use an electric bike it still makes me cough (I consider the power the equivalent to a permanent tail wind).

But just to answer he question, here is the graph for Australia in 2012.  I still have room to move at 48.

I did see a graph indicating lung function decline, and that is more worrying. Hardly blowing 35% of expected is not a good place to be but I'm coping with it quite well. According to the below graph it is just about where statistics would project me at.


Thursday, April 17, 2014

The Way of CF now available on line!

Well, I am amazed! We have The Way of CF available on Amazon UK and US (links below). You can now have a full colour large format paperback book (100 pages, size of A4 paper roughly) to read about The Way of CF, walking the El Camino with Cystic Fibrosis!



Though you can find it on Amazon I suggest you buy it right from the source, which is CreateSpace
https://www.createspace.com/4717792 - and a $5 DISCOUNT COUPON for that link: G5K525BB

If you live in Australia, I am keeping some in stock and can mail them for AU$20. Any profits/donations are of course used to fund books that I donate to CF Associations or use as gifts to people with Cystic Fibrosis. And when details of  the 2015 Bibulmun Track become available, 1000kms hike through Western Australia, funds may be used to help fund postcards etc for that trip - watch out! Anyone who has a suggestion for a name for that fundraiser leave a comment or email bibulmun@cotu.biz !


PLEASE LEAVE A REVIEW OF THE BOOK ON
GOODREADS or AMAZON!






Tuesday, November 19, 2013

Camino Family

I am hoping to print this blog for fun, using one of the blog-to-print services. These services allow you to edit content and add/delete bits, so in effect it becomes a cool little memory book. During the camino there was one special Camino Family member called Sally who traveled with me the week of the Meseta. Sally is a writer and a massage therapist, and like me she was in no hurry and was there to enjoy the walk.Being a writer I thought I'd ask her for a little preface to the book. This is the most beautiful preface she wrote for me. Even if the book doesn't happen, this will:
_____________________________________________________

Following years of dreaming and insane training and planning in the height of Darwin's wet season for several months, my Camino finally transpired (as opposed to perspired) in early September 2013. But that is where the strategising ended, for to walk 'The Way', one must expect the unexpected. I fell naturally into the slipstream of serendipity, synchronicity and the magical, with the often narrow, winding paths always disappearing around a mysterious bend or corner as the symbolism of life on this path.

On a day shrouded in ethereal mist, I would often think of the slipping in and out of reality. One such occasion involved a toilet stop behind the ubiquitous blackberry bushes lining the route of much of the Camino, from which I had been plucking, probably also causing the frequent stops. I was in squatting mode when suddenly, a preposterously bright lime green and blue lizard shot out from underneath me. I thought maybe the consumption of too many blackberries had hallucinogenic effects too. So how does this link to Walter?

I had heard along the 'blackberry vine', that a crazy Tasmanian was somewhere out there on the Camino, raising awareness for Cystic Fibrosis as a sufferer himself. Everybody had met him but me it seemed. I had been walking with Ron from Canada for the day, and had thoroughly enjoyed his company. We stopped at the village of Ages for eats and sleep, heading for the albergue. Coming down for the Pilgrim's dinner, we walked into the dining area and a loud cry went up for Ron. A group of pilgrims all sitting at the one table hadn't seen him for a few days and were obviously pleased to reconnect. He then told me who they were. Walter and his harem.

Ron and I chatted away, and it started to rain, filling the air with the perfume of satiated dry earth. I excitedly went to the window to lean out for some lung fulls, and when I turned away, noticed a poster of the local wildlife on the wall. I cried out, "That's the lizard!", which Walter heard, and intrigued, came over to our table. Judging by his striped, non matching socks and the t-shirt with the map of Tasmania in the unmentionable position (hint....looks like some female anatomy), I knew this was an interesting character and with the admiration of him walking with limited lung function, offered him a foot treatment in my capacity as massage therapist looking out for my fellow pilgrims. I even had a collapsible bucket on board for him to soak his feet in. Saying goodbye, and wishing him luck, I went on my way, but who should walk into the dining room of a bar a few villages down the track, and invite himself to dinner? Initially annoyed because I wanted to write my blog , I was soon won over, and we agreed to meet the next morning to walk together for the day.

'The day' turned into eight, across the dreaded Meseta, which is flat and often treeless. I hate to emphasise it too much, but Walter and I loved this section and thought it was the best as we laughed, talked, ribbed, stopped to look at the marvels of nature, horsed around, opened our hearts and minds and souls, and when I had had enough, which was once, made Walter tune into his podcasts of Richard Fidler, the great ABC interviewer. But amongst all of this, was his unwavering kindness towards his fellow pilgrim, his extended love to mankind all woven in and around and through his necessary routine to stay alive. He shared so readily wanting to order plates of food for all at stops along the way and I told him he was one of the funniest men I had ever met. And to be one of the funniest men, one also has to be intelligent, and I loved his fierce intellect. And if that wasn't enough of a find, he regaled me with his outrageous stories of his adventures, except they were all true!

Life on the Camino is over as such for me, but I will always have the greatest admiration for Walter, who was carrying a far heavier pack than most, physically and metaphorically, weighted down with all of his medications and the added complications of sending his excess medicines ahead. Not only that but he walked every step, and then not too surprisingly carried on to Finisterre, the ancient site of Druidic origin overlaid with the Christian Camino significance. Not many pilgrims carry on from Santiago to there, and one receives a separate Compostella in recognition.

I call it my gift from the Camino. The gift of meeting Walter, and the privilege to walk beside him and write this preface for what will be a very entertaining, inspirational and inciteful read.

A quote comes to mind, which accompanied a beautiful photo (see below) in an exhibition I stumbled upon of pilgrims on their journeys.....'Don't walk behind me, I don't want to be your guide. Don't walk ahead of me, I cannot follow you. Walk beside me and I will be your friend.'

Sally---








The previous adventure!

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