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Monday, April 21, 2014

Am I the oldest person with CF?


Thank goodness there are plenty of people with Cystic Fibrosis older than me! What you do with your cystic fibrosis differs wildly. But no matter what you do the odds are generally against you. Some people have a career and family and that keeps them strong and motivated to be compliant and fight CF. I plan adventures and that motivates me to keep fit and healthy. Having a dog helps me get out thehouse  hail rain or shine for a decent walk with plenty of hills each day, or even a paddle in my kayak (with dog!). My adventure planning motivates me to ride my bicycle everywhere everyday around town - even though I now use an electric bike it still makes me cough (I consider the power the equivalent to a permanent tail wind).

But just to answer he question, here is the graph for Australia in 2012.  I still have room to move at 48.

I did see a graph indicating lung function decline, and that is more worrying. Hardly blowing 35% of expected is not a good place to be but I'm coping with it quite well. According to the below graph it is just about where statistics would project me at.


Thursday, April 17, 2014

The Way of CF now available on line!

Well, I am amazed! We have The Way of CF available on Amazon UK and US (links below). You can now have a full colour large format paperback book (100 pages, size of A4 paper roughly) to read about The Way of CF, walking the El Camino with Cystic Fibrosis!



Though you can find it on Amazon I suggest you buy it right from the source, which is CreateSpace
https://www.createspace.com/4717792 - and a $5 DISCOUNT COUPON for that link: G5K525BB

If you live in Australia, I am keeping some in stock and can mail them for AU$20. Any profits/donations are of course used to fund books that I donate to CF Associations or use as gifts to people with Cystic Fibrosis. And when details of  the 2015 Bibulmun Track become available, 1000kms hike through Western Australia, funds may be used to help fund postcards etc for that trip - watch out! Anyone who has a suggestion for a name for that fundraiser leave a comment or email bibulmun@cotu.biz !


PLEASE LEAVE A REVIEW OF THE BOOK ON
GOODREADS or AMAZON!






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